Support Group Links

Birth Defect Research for Children 
Provides information about birth defects, as well as services and resources that may be helpful to families.  Links parents of children with similiar birth defects for mutual sharing and support.  Sponsors national birth defect registry.  Maintains database on medical literature and research.

FamilyVoices
Grassroots organization the speaks on behalf of children with special healthcare needs at the national, state and local levels.  Encourages and supports families who want a role in child healthcare. Literature in English and Spanish.
Family Voices
3411 Candelana NE, Suite M
Alguquerque, NM 87107 
voice: 888-835-5669     fax: 505-872-4780

Parents Helping Parents
PHP provides education and skills training, information, guidance, and peer support for families with the unexpected diagnosis of and ongoing impact of childhood disabilities, including but not limited to intellectual, learning or physical disabilities and special healthcare needs.

Parent-To-Parent of Colorado
Connecting families with children or adults with disabilities or special healthcare needs in communities across Colorado.  Online supoort and chat; toll-free information and referrals in English and Spanish.  Matches families with children with similiar problems.  Phone:  877-472-7201

Parents as Teachers
National group with local affiliated programs.  Aims to strengthen and empower families with support, peer role-modeling and knowledge about parenting at critical stages of child development.  Serves adolescent parents, low income families, culturally-diverse families and families who have children with disabilities or chronic illnesses.

SupportPath.com
A directory of links to health-related support communities, message boards, chats, newsgroups, mailing lists, and organizations.