Brain & Nervous System Links
Sections of this web page:
Brain & Nervous System - National Library of Medicine
Alphabetical list of nervous system disorders; choose the disorder and you will be lead to full-text articles.
National Information Center for Children and Youth with Disabilities
Information for parents and schools on all types of disabilities in children from speech to vision and physical disability. Covers from newborn through 12th grade.
National Institute of Neurological Disorders & Stroke
NINDS conducts and supports research on the causes, prevention, diagnosis, and treatment of neurological disorders. Articles on neurological disorders and children with disabilities.
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American Brain Tumor Assoc
Full text brochures, articles, news on all types of brain tumors, and their newsletter. Section on how to find clinical trials. Links to other cancer sites and web chat rooms for cancer patients.
American Cancer Society
Both adult and childhood cancers covered here. Has information on types of treatment; living with cancer; complementary & alternative treatments; survivors' network; and directory of cancer treatment centers and local ACS chapters. Includes Spanish materials.
Cancer.gov - National Cancer Insititute
Has current information on all types of cancer, treatment, testing for cancer, prevention, coping with cancer, supportive care, genetics, clinical trials. In-depth information on specific cancer types is available in the PDQ section.
OncoLink
Provides current information on the latest cancer treatments. Can be searched by keywords. Good basic information. Updated monthly by the University of Pennsylvania Cancer Center.
Pediatric Oncology Resource Center
A place for parents, friends, and families of children who have or had childhood cancer. Information about and links to common childhood cancers, diagnostic procedures and treatments; family support including financial issues, and grief links.
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Brain Injury Association US
Full text information on what happens during brain injuries, treatment & rehabilitation; living life after a head injury; directory of chapters; books & audio tapes; Kids Corner.
Concussion in Children & Teens (.pdf)
También está disponible en español: Concusión en niños y adolescentes (.pdf)
Frequently Asked Questions About Head Injury
Answers to frequent questions asked by families. Prepared by the Texas Head Injury Assoc. and the National Health Injury Foundation.
Traumatic Brain Injury (.pdf)
También está disponible en español: Lesión Cerebral Traumática (.pdf)
Traumatic Brain Injury Fact Sheet
Overview from the National Institute of Neurological Disorders & Stroke.
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American Epilepsy Society
Intended for professionals, but has a patient information on drugs, drug alerts and drug assistance programs.
Epilepsy Foundation
Educational materials for parents and schools; covers medications, clinical trials, research; has online newsletter.
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Hydrocephalus Association
Provides support, education and resources for families dealing with the complexities of hydrocephalus.
Spina Bifida Association of America
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MedlinePlus: Muscular Dystrophy
Full text articles on symptoms, diagnosis, frequently asked questions, coping, teacher's guide; articles for teens and children. Links to research and organizations. Spanish translations.
Muscular Dystrophy Assoc.
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MedlinePlus- Pain
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Tourette's Syndrome Association - USA
Covers treatment, research, news. The "Resources" section has a list of publications and videos on medications, coping by parents and teachers, etc. Publications must be purchased.
Tourette's Syndrome 'Plus'
Covers Tourette's syndrome, obsessive-compulsive disorder, PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections), ADD, rage attacks, sleep disorders, and sensory integration.
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- “Brain Injury Source Book: Answers to Questions Most Often Asked by Family & Survivors” by National Resource Center for Traumatic Brain Injury, 2000
- "Children With Tourette Syndroms: A Parents' Guide" by Tracy Marsh; Woodbine House, 2007.
- “Children with Traumatic Brain Injury: A Parent’s Guide” by Lisa Schoenbrodt; Woodbine House, 2001
- “Hydrocephalus: A Guide for Patients, Families & Friends” by Chuck Toporek; O’Reilly, 1999
- “Seizures and Epilepsy in Childhood: A Guide” by John M. Freeman; Johns Hopkins University Pres, 2002
Can't find what you want? Request a medical information packet from the Family Health Library
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