Blood Disorder Links

American Sickle Cell Assoc.
Membership information; educational materials explaining sickle cell trait vs disease; support group contact information.

Blood Transfusion & Donation 


Blood & Blood Disorders
Links to pamphlets on: what is blood; quick facts; coping with transfusion therapy; understanding blood tests; blood donation; organizations.  Has a Spanish section.

Bone & Marrow Transplant InfoNet
A non-profit group serving the needs of the transplant community; has a very good newsletter, book lists, drug database, news bulletin services and long list of resources.

Curesearch (National Childhood Cancer Foundaton and Children's Oncology Group)
Materials written for both parents and children covering all types of cancer,  treatments, going back to school and maintaining a healthly lifestyle.  Has an on-line support area.

Internet Guide to Bone Marrow Transplant Links
Nearly 100 links listed here; includes informative articles and links to chat and support groups.

NHF Youth World (National Hemophilia Foundation)
For middle school and older kids; information all all types of bleeding disorders, includes a list of camps and local chapters, plus lots of just fun stuff.   Has Spanish language information.

Leukemia & Lymphoma Society
Current booklets on leukemia, lymphoma and myeloma; can be ordered or printed online.  Single copies are free to the public. Has a directory of chapters across the country.  Includes many Spanish publications.

MedlinePlus: Sickle Cell Anemia
Links to: Fact sheets; diagnosis, treatment; clinical trials; research; organizations; screening in newborns; has a Spanish section.

OncoLink
Use the search box to find information on all types of cancer and bone marrow transplants. Sponsored by the Abramson Cancer Center at the University of Pennsylvania.  Information in Spanish too.

Sickle Cell Information Center
Description of sickle cell anemia; educational materials for parents, patients, teachers and employers; newborn screening; frequently asked questions; many links.

Sample books in the Family Health Library

  • “Bone Marrow and Blood Stem Cell Transplants: A Guide for Patients”   by Susan Stewart; Blood & Marrow Transplant Information Network, 2002
  • “Childhood Leukemia: A Guide for Families, Friends & Caregivers” by Nancy Keene; O’Reilly, 2002
  • “Hope and Destiny: A Patient’s and Parents Guide to Sickle Cell Disease and Sickle Cell Trait”   by Allen Platt, Jr.;  Hilton Publ Co., 2002
  • “Living With Haemophilia”   by Peter Jones; Oxford University Press, 2002.
  • "100 Questions & Answers About Bone Marrow & Stem Cedll Transplantation" by Ewa Carrier; Jones & Bartlette, 2004

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