Cardiac Kids Parents’ Resource Guide and Journal
Read an Excerpt from the Book – Stories from Other Parents
Order the Cardiac Kids Parents’ Resource Guide and Journal
To order your own copy of the Cardiac Kids Parents’ Resource Guide and Journal, please send a suggested donation of $12 to cover production and shipping costs to Cardiac Kids at The Children’s Hospital to the address listed below.
Cardiac Kids Chapter
Association of Volunteers
The Children’s Hospital
13123 E. 16th Avenue
Aurora, CO 80045
Should you have any questions about the book or your order, please feel free to contact Cardiac Kids at (720) 777-1234.
Why the Cardiac Kids Parents Created This Guide
This book was created for parents of a child newly diagnosed with a heart disorder, by parents who have already been down this path. Being told your child has a heart disorder or heart disease is a very hard thing to hear. Now you are thrown into a new kind of parenting, one as an advocate, decision-maker, and caretaker for a child with a serious health condition. Something you never expected would happen to you. We want you to know that you are not alone.
This book was developed because the Cardiac Kids parents have already been down the path that you are on now, and we want to share some of the things – parent to parent – that we have learned along the way. It is our hope that your journey, while it will never be easy, will at least be eased with the insights that you will find in this book. Please know that you are not alone and that we are here to help you however we can.
Table of Contents:
- Understanding Your Child’s Diagnosis
- The Hospital Experience: What to Expect and How to Get Through It
- You Are Not Alone: Stories from Other Parents
- Going Home: Caring for Your Child at Home
- Making Sense of the World of Cardiology
- Resources
- Glossary of Common Medical, Cardiology and Transplant Terms
- Your Child’s Medications
- Your Child’s Medical Journal
